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The Truth
About Caregiving |
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By Judy Foreman
June 2006 Online
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Although marriage is generally
good for health, the stress of caring for a spouse with a disabling
illness can shorten your life.
Yolanda Spencer is eternally
grateful for the weekly visits from fellow members of the Bethel AME
Church in Jamaica Plain, Mass. Without them, she's not sure how she
would have survived the past eight years since her husband Vincent,
now 62, fell off a ladder and became a quadriplegic.
An accident like Vincent’s “is such a devastating thing to happen to
a family,” says Yolanda, adding that their relatives live far away.
Having church members nearby "has been really, really supportive."
Two recent studies show just how detrimental such caregiving can be
for the health of a spouse and how close social connections — such
as those the Spencers have with friends from church — can offset
some of this risk.
Differences in race
Although marriage is generally good
for health, the stress of caring for a spouse with a disabling
illness can shorten the life of a caregiving spouse, Harvard Medical
School physician and sociologist Dr. Nicholas Christakis showed in a
recently published study. How well one spouse fares after the death
of the other hinges in large part on race, Christakis found in a
separate, large study also published a few weeks ago.
While whites married to whites suffer a “large and enduring
widowhood effect” when one spouse dies, blacks married to blacks
don’t, probably because they have stronger social ties — to church
and extended family — that offset the trauma of losing a spouse,
Christakis said.
Actually, it’s the wife’s race that really counts, according to the
study of 410,272 older couples, published in the American
Sociological Review. A black man married to a white woman suffers
from being widowed just as though he were white, because her kin
might reject him after her death, Christakis suggests. But if a man
— black or white — is married to a black woman, he is buffered from
the widowhood effect, because her black kin accept him as part of
the family and continue to provide social and emotional support.
In other words, Christakis says, one of the many things a black wife
does is connect her husband with her kin, putting him in a
"supportive context" that continues even after her death.
“When you marry someone, you really do marry their family,” says
Gail Wyatt, a professor in the department of psychiatry at the David
Geffen School of Medicine at UCLA who was not part of the study.
“It’s marriage in the context of other people that is the protective
thing.”
Many blacks and immigrant families are used to communal caregiving
of the very old and the very young, Wyatt says. As immigrants adapt
to life in the United States, however, they tend to “shift toward
the white model.”
Differences in gender
In general, research shows that marriage benefits a person’s health,
especially if that person happens to be male. Married men, on
average, live seven years longer than single guys, and married
women, two years longer than their single sisters. Married people
have better mental health than those who have never been married,
too — but, again, it’s men who benefit more from marriage.
The emerging view of the link between marriage and health, however,
is more subtle than that. “Marriage is good for you, except when it
isn’t,” says Janice Kiecolt-Glaser, a professor of psychiatry at
Ohio State University, only half in jest. In her own work, Kiecolt-Glaser
has shown that wounds heal more slowly than normal in caregivers of
spouses with dementia, a sign that the stress of caregiving impacts
the immune system.
Researchers have long known that the death of one spouse increases,
at least temporarily, the risk of death for the surviving spouse.
What Christakis' team shows its second new study was that it’s not
just being widowed that can ruin the health of the healthier spouse,
but the stress of caregiving has an effect as well. The causes of
excess death in the caretaking spouse include accident, suicide,
heart attack, infection, lung disease, and diabetes, according to
the study of 518,240 couples aged 65 and older.
In the first 30 days after a spouse’s hospitalization — a marker for
the time of diagnosis — the risk of death for the partner is almost
as great as it would be if the spouse had died. After a husband’s
hospitalization, a wife faces a 44-percent-higher risk of death than
if her husband were well, the study found; a husband faces a
35-percent-increased risk.
Perhaps even more startling, a woman taking care of a husband with
dementia or psychiatric illness was at greater risk of dying than if
she were widowed. Taking care of a spouse with cancer, on the other
hand, was much less deleterious to the healthier spouse, probably
Christakis says, because cancer, though potentially lethal, is often
not as disabling day-to-day.
You need support
Suzanne Mintz has been taking care
of her husband for 30-plus years, since he was diagnosed with
multiple sclerosis. Over that time, she has suffered four bouts of
serious depression, in part because of her husband's illness, and
the couple separated twice. They are now back together — with more
support, including home health aides. She said she cofounded the
National Family Caregivers Association,
a nonprofit advocacy organization in Kensington, Md., in part to
help caregivers get the kind of support she needed.
The moral of the story is clear:
- Get — and stay — married if
you can find someone to love, and take good care of each other.
If one of you gets sick or disabled, don’t try to manage alone;
- Get help — and social contact
— from as many sources as you can, including churches, community
groups, and social service agencies; and
- If you do become widowed, try
to maintain the family and community ties you had when you were
married. It could be a matter of life or death.
Judy Foreman, a former staff writer at the Boston Globe, writes a
biweekly column about health.
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